Living With An Invisible Illness


Living With An Invisible Illness
Living with an invisible disease and still striving ahead.

I was diagnosed with Ehlers Danlos Syndrome when I was 25, which when they told me this it could have been spoken to me in sign language or any other language. It made no sense to me and I had no clue what that disease was. After I left Cincinnati Children's Hospital, which is an hour and a half away from my hometown in Columbus. I went home and I didn't even bother to look it up online to see what it meant. A year later, my Mom was diagnosed with it and she started to research it and because she started to research it I started to learn more about what it was about and what it did to my body. Of course it affected my body differently than hers and vice versus. I started having surgeries when I was 16. My first surgery was a left knee surgery and it was to correct a dislocation that I continued to have. 
I started to have dislocations when I was 12, at least I remember having them at that age. I played a lot of softball at a young age and was catcher for a few years, which probably did not help my knees and other joints. Once I had my first knee surgery I whirlwind of emotions and a whirlwind or things started to happen. The years after that surgery start to blend together. I started to have knee surgery after knee surgery, back surgery after back surgery. Neck surgery after neck surgery. And here we are at 2012 and I have had 40 surgeries and 12 more pending and no end in sight. We are correcting things that shouldn't of happened and correcting things that my Ehlers Danlos Syndrome, or for short EDS created. 

Besides the dislocations of every joint that EDS creates we also get other diagnoses or symptoms as we call them such as osteoporosis, I never thought at 29 I would say I have arthritis and osteoporosis, which I have had since I was 19. I also have heart issues such as sinus node tachycardia, atrial fibrillation and the doctors suspect POTS which is another heart aliment. 

Its been a long road. I never thought my life would turn out this way. I have been lucky though in my eyes. I have a great group of friends who are by my side and they drag me out if I am feeling down or come to me if I can't come out. I also know that without this illness I wouldn't of became who I am today. So regardless of the surgeries, the constant doctor appointments, and the constant medical tests I am content with how my life is. I found an outlet that I never would have found had this not happened. And I have met a lot of great people throughout this crazy ride we call life. So even though my life isn't ideal it is still mine and not even EDS can take that away from me. 

Article contributed by
Advanced Member

Christy Goldstein

Relationship Coach

Christy Goldstein

Ask me about my free strategic sessions!

Also check out


Location: Columbus, OH
Credentials: CLC, CPC, CRC
Specialties: Dating/Being Single Support, Empowering Women, Sexuality
Other Articles/News by Christy Goldstein:

6 Steps To Achieve Before You Look For Your Life Partner


Dating is a hard thing to do regardless of race, gender, religious backgrounds, etc. But, if you are truly ready to have a partner in your life and are ready for marriage these are a few dating tips you need to think about before you start to look for your partner. 1. Job: Most people have a job, but if it’s not paying you what you will need to ... Read more

My Mom Didn't Listen So Our New Family Turned Into A Nightmare


Having a broken or should I say blended family is normal these days, but what if the person your parent is in love with isn't as he appears. My intuition has always been spot on, my Mom's not so much. So when I met him for the first time, the man she was dating, in less than 5 minutes I knew he wasn't a good guy. After the meeting I told my Mom to ... Read more

What Are Your Dating Morals: Should You Date Your Ex's Brother?


Recently, I was talking to a friend about how the dating pool in our 30's is sadly drying up, that we are forced to go back to past loves or even our past loves family members. Now, I am not knocking anyone who has dated a family member of an old relationship, but I do think that if you go this route, it is best that the ex of the family member you are ... Read more

See More

Latest Expert Videos
Must-see Videos
Most Popular