Surviving a Health Crisis

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Surviving a Health Crisis

I am a 26 year old female who was diagnosed with Lupus at the age of 22. For those who don't know what Lupus is, your immune system mistakes your body for a disease or virus and attacks itself (my cousins have nicknamed me "Civil War"). There are many different ways Lupus attacks and affects your body. Mine attacked my kidneys causing me to only be functioning at about 50% of their ability. After 2 months of tests they decieded the best treatment was chemo. After 6 months of chemo, a large part of my immune system had been killed off, stopping it from attacking my kidneys. With a large coctail of meds my Lupus is under control. I still get side effects from time to time: I have to have 8+ hours of sleep, I catch any illness very easily because I am continuely on immune supressent drugs, and suffer from sever fatigue when I have a flair up. Unfortunely, there is not a press to find meds or cures for Lupus as there is for cancer, but that is another topic.

After the treatments and with the Lupus under control, it hit me. Why would anyone want to marry someone with such a dibilitating disease? There are days I can't get out of bed because my body is so exausted. Staying out all night with my girlfriends was out of the picture unless I wanted to be extremely tired the next day and spend most of it in bed. I am not one to let something like this define me....I define my Lupus not my Lupus defining me.

Fortunetly in March a little over a year after all this began I met a wonder guy who later became my husband. I was very honest about my disease and the side effects. He was very supportive and understanding. He loves me for me, Lupus and all!

About a month ago my husband had sever stomach pains that wrapped around to this back. After going to the ER and staying in the hospital for 5 days they discovered his bladder was retaining double the ammount of urine a normal bladder. They didn't quite know the cause. He visited with his primary care physician and he sent him to the ER to get a MRI (our insurance wouldn't cover it unless he was admitted...go figure). After the MRI and a lumbar puncture (spinal tap), they have said he has Progressive MS.

I am a firm believer in God and his hand in my life! This truly is a God thing. Here are two people with dibilitating deases brought together because we understand the pain and suffering we go through without having to say anything. "I am having a bad day" explains everything! Who whould have known that when we both said "through sickness and in health" it would mean something like this.

Be thankful you, your family, and friends have their health. Get your monthly/yearly check ups! Get involved and support these health issues because we do have other diseases besides cancer causing people to suffer and die!